Monday, August 11, 2008

My little miracle!

It's been ten months since I have updated baby Connor Jack's Blog. I don't even know where to begin. It's hard because when I open up this blog I am reminded of that painful time in our lives. There have been times where I have opened up the blog and just broke down looking at the pictures and reading the posts. It is just amazing that after everything Connor went through those first months of his life, he is a perfect little boy! I love him so much, I can't even put words to how much I love him. He has brought so much joy to our lives and anybody that knows him would agree with me when I say that there is something extra special about him. He is the happiest, most content, sweetest little baby. Jay and I always say that we don't even think we have ever heard a real cry from him. He's just happy all the time. As far as developmentally he is doing really well. He can walk along the furniture, and pull himself up, and even let go for a second before falling. I am really proud of him, he has come so far! I want to make this blog for Connor to read someday, so that he will know the happieness he has brought to my life. I want to share stories and memories and more of the amazing things to come about my little miracle!

Friday, October 5, 2007

Oct 5, 2007

Connor came home yesterday! He came home on oxygen and an apnea monitor. He is doing good, the kids love him so much, especially Kennedy. We bathed him and put the clothes that we bought on him. He loves his swing, I think he is happy to be home! When he was discharged he weighed 7 lbs 4 oz and is 19 in long. He is very alert and is a happy baby. He has lots of dr. appts he has to see his pediatrician monday, a pulminologist, an orthopedic dr. and the plastic surgeon. He also has a home nurse come see him twice a week. Connors journey in the NICU is finally over, and we are so happy to finally have him home with his family.

Saturday, September 22, 2007

Sep 22, 2007
Hi everybody! Connor is now 5 lbs. 15 oz and 17 inches long. He is doing good, he is still requiring a low flow of oxygen. One of the nurses today said that he is addicted to the oxygen, she was just joking. anyway he is now taking 6 out of 8 feedings by the bottle. The doctor told me that he can go home on oxygen as soon as he is taking all eight feedings by mouth. So I think we are getting close. He is a really good baby, he hardly ever cries, he is a sweetheart! He has been put in a brace for his hip because he has an unstable hip from being breech. He has to be in it for 23 hours a day for a month then they will do another ultrasound then he might have to be in it for 6 months. We will find out in a month. Things are good with the family, Kennedy and Ayden are with Steph and grandma Teddie right now, and Paiton is with us. It has almost been 3 months and we just want the baby home. Thank you to everybody who has helped out with our kids or brought us dinner. And thanks for everybodys thoughts and prayers.

Tuesday, September 11, 2007

Sep. 11, 2007
Connor is still on the nasal canula, he has moved from 5 to 3 liters of oxygen flow and he is between 30-35 % oxygen. We breathe 21% oxygen. He hasn't moved down off the flow of oxygen very fast. He likes the extra support. He is 5 lbs. 7 oz. and is tolerating full feedings. He is almost 39 weeks gestation.

Tuesday, August 28, 2007

Aug. 28, 2007
Connor is going great. He is still on nasel canula and they are slowly weaning him off of that. He is up to full feedings, still being fed through a tube, which is being slowly infused over an hour. They don't want to push his feedings because if he starts to not tolerate it they will have to start over from scratch. But so far he is doing well with the feedings. He will probably start bottle feeding this week. He has to learn how to coordinate sucking, swallowing, and breating at the same time. After that I will be able to breastfeed him. I asked the doctor yesterday when he might be able to come home and he said he thought within the next two weeks. So that is exciting news. Last night he weighed 4 lbs. 14 oz.

Thursday, August 23, 2007

Aug 23, 2007
Today baby Connor Jack is 4 lbs. 10 oz. He wore his first outfit today, because he was put into a crib to see if he could maintain his own temperature without help from the lamp. He is doing well with that. He is still on the nasal canula and they are slowly weaning him off of that. I told his nurse today how great it is to finally see a light at the end of the tunnel. He is getting closer and closer to coming home everyday. jay and Iget to hold him every time we are there, I get overwhelmed with joy when I get to hold him and bond with him. I just can't even explain the love I have for him, he is precious! But things are going well and he is doing great. He is now 36 weeks gestation.

Tuesday, August 21, 2007

Aug. 21, 2007
Hi everybody! I hope everybody hasn't given up on me updating Connor's profile. It has been a rough couple of weeks for the baby and us. But there is really good news. Connor has come off the ventilator. He came off on Saturday Aug 18th. He was put on Cpap for two days and now he is just on a nasal canula. He is breathing the same amount of oxygen that we breathe and he is doing real well. Being off the vent is one step closer to coming home. He still isin't getting any food through his belly. He had an infection 3 weeks ago and it was a gastriointestional infection so his belly still isin't tollerating food. It just takes time. But as soon as we can get him eating we can hopefully bring him home. His current weight is 4 lbs 7 oz and he is big enough to maintain his own tempurature. His length is 16 1/2 inches. He is getting so big. He has got chubby little cheeks and a double chin. His foot is starting to heal but it will probably take months to completely heal. Over the last couple of weeks he received three more blood transfusions, he was on antibiotics for 17 days, and he went on watch for what is called NEC. It is a very serious condition where his intestions were inflamed. But he got past all the little bumps in the road and is now off the ventilator and on his way to coming home. Some of you may not know a whole lot about the IV burn. It happened on Aug 5th. The IV infiltrated and caused a 3rd degree burn. The burn was so bad that they have had a plastic surgon look at it and he told me that he might need skin graphs later on. The main concern that the doctors have is weather his mobility will be affected, but we won't know that until later on either. It has been a very hard thing for us to know that our baby has suffered a 3rd degree burn on top of what he is already going through. I know a lot of people want to see the pics of the burn, so i have posted some. They are hard to look at but it will give a little bit of a perspective on how bad it really is. It just goes to show how special connor is that he has had to endure so much already and how strong he is. He is such a little fighter and he is so sweet and so special. We love him so much and can't wait to bring him home to his family.